What is IC/BPS? | Interstitial Cystitis Association (2024)

Interstitial cystitis (in-ter-stish-uhl sĭ-stī’tĭs)/bladder pain syndrome, or as we call it, IC/BPS, is a bladder condition that usually consists of multiple symptoms. Most IC/BPS patients have recurring pelvic pain, pressure, or discomfort in the bladder and pelvic region, and urinary frequency (needing to go often) and urgency (feeling a strong need to go).

IC may also be referred to as painful bladder syndrome (PBS), bladder pain syndrome (BPS), and chronic pelvic pain.

Types of IC/BPS

Researchers continue to study IC/BPS and investigate why IC/BPS symptoms can be different in different patients. Many believe that there may be additional subtypes, called phenotypes, of IC/BPS. This also helps to explain why there is such disparity in how IC/BPS patients respond to treatments. Of note is the national phenotyping initiative called the MAPP Research Network, which is supported by NIDDK, part of the National Institutes of Health.

Currently there are two recognized subtypes of IC/BPS: non-ulcerative and ulcerative.

  • Non-ulcerative: 90% of IC/BPS patients have the non-ulcerative form of IC/BPS. Non-ulcerative IC/BPS presents with pinpoint hemorrhages, also known as glomerulations, in the bladder wall. However, these are not specific for IC/BPS and any inflammation of the bladder can give that appearance.
  • Ulcerative: 5 to 10% of IC/BPS patients have the ulcerative form of IC/BPS. These patients usually have Hunner’s ulcers or patches, which are red, bleeding areas on the bladder wall.

End Stage (Severe) IC/BPS

About 5% of IC/BPS patients have persistent symptoms for more than 2 years and 5% of patients have end stage disease defined as very hard bladders with low capacity and terrible pain. Many of these patients also have Hunner’s ulcers. Learn more about how to treat severe IC/BPS. Watch the ICHelp YouTube interview with internationally-known IC/BPS expert Kristene Whitmore, MD, from the Pelvic and Sexual Health Institute (PSHI).

Additional IC/BPS Resources

What is IC/BPS? | Interstitial Cystitis Association (2024)

FAQs

What is IC/BPS? | Interstitial Cystitis Association? ›

Interstitial cystitis/bladder pain syndrome (IC/BPS), formerly called interstitial cystitis, is a chronic (>6 weeks duration) pelvic condition that affects or appears to affect the urinary bladder with symptoms of discomfort, pressure, or pain.

What does IC BPS stand for? ›

Interstitial cystitis/bladder pain syndrome (IC/BPS) is a group of symptoms including mild to severe bladder pain and an urgent and/or frequent need to urinate. The disorder can affect women and men but is more common in women.

What is the main cause of interstitial cystitis? ›

The cause of interstitial cystitis (IC) is unknown. Researchers are looking at many theories to understand the causes of IC and find the best treatments. Most people with IC find that certain foods make their symptoms worse.

What is the life expectancy of someone with interstitial cystitis? ›

What is the life expectancy for someone with interstitial cystitis? Interstitial cystitis is a chronic condition where the bladder is more sensitive than usual. Health experts indicate that it is not a life threatening condition, so it will not impact someone's life expectancy.

What is the difference between a UTI and interstitial cystitis? ›

Because they can cause similar symptoms, it's easy to confuse the two. But they're very different conditions. Interstitial cystitis happens when the bladder gets inflamed, but it's not entirely clear why this happens. UTIs happen when bacteria infect parts of the urinary tract, usually the bladder.

How do you fix interstitial cystitis? ›

How do you fix interstitial cystitis/bladder pain syndrome?
  1. Diet changes. Some people who have IC/BPS report that certain foods and drinks worsen their symptoms (triggers). ...
  2. Physical activity. ...
  3. Reducing stress. ...
  4. Physical therapy. ...
  5. Bladder retraining. ...
  6. Oral medications. ...
  7. Bladder instillations. ...
  8. Bladder stretching (hydrodistension)

What happens if interstitial cystitis goes untreated? ›

If untreated, the interstitial cystitis will result in a gradual shrinking of the capacity of the bladder and this will usually progress to the associated symptom of pain; thus, as the disease progresses, pain becomes a predominant feature. This may be ascribed as pelvic pain, lower abdominal pain, or fleeting pain.

What is the best medication for interstitial cystitis? ›

Pentosan polysulfate sodium (Elmiron), which is approved by the Food and Drug Administration specifically for treating interstitial cystitis.

What foods aggravate interstitial cystitis? ›

However, some people with IC find that certain foods or drinks trigger or worsen their symptoms. Coffee, soda, alcohol, tomatoes, hot and spicy foods, chocolate, caffeinated beverages, citrus juices and drinks, MSG, and high-acid foods can trigger IC symptoms or make them worse.

Does drinking water help interstitial cystitis? ›

If you feel an IC flare coming on, start treating it as soon as possible. Try these strategies for relief. Increase water intake – Drinking more water may help curb the severity of your symptoms. Take medication – Your healthcare provider may prescribe medication when you have a flare.

How many times a day do you pee with interstitial cystitis? ›

If you have interstitial cystitis, you'll receive the message to pee much more frequently, sometimes up to 60 times in a day, and the process of holding and releasing urine becomes very painful. For women, the pain in the pelvic region can increase in severity during the menstrual cycle.

Do you gain weight with interstitial cystitis? ›

While many IC patients deal with weight gain due to all the above reasons, other patients deal with weight loss. Beyer said many patients lose weight initially due to the fear of eating too many different foods.

What famous person has interstitial cystitis? ›

Whether you know Charlotte McKinney from Baywatch, Dancing With The Stars, or one of her many ad campaigns, what you probably don't know is that she suffers from a chronic bladder condition called interstitial cystitis.

What does an urologist do for interstitial cystitis? ›

Doctors use treatments to either coat and protect the bladder or suppress inflammation. Medications for interstitial cystitis such as Elmiron may reduce bladder discomfort and pain in some people with IC and may work by repairing the damaged bladder lining.

What does an IC belly look like? ›

During flares, patients may also experience the “IC Belly,” a sudden and random swelling of the lower abdomen. When an IC bladder is examined using a procedure called hydrodistention with cystoscopy, physicians often find small, bleeding wounds, also known as petechial hemorrhages or glomerulations.

Does interstitial cystitis ever go away? ›

Interstitial cystitis (IC) is a chronic and painful condition of the bladder. People with IC have a bladder wall that is tender and easily irritated, leading to uncomfortable symptoms. Although IC currently has no cure, the symptoms can be managed to help you feel better and live more comfortably.

What does bps stand for? ›

What Are Basis Points? Basis points, otherwise known as bps or bips, are a unit of measure used in finance to describe the percentage change in the value of financial instruments or the rate change in an index or other benchmark. One basis point is equivalent to 0.01% (1/100th of a percent) or 0.0001 in decimal form.

What does the acronym IC stand for? ›

Integrated circuit, a set of electronic circuits on a semiconductor chip. Interactive C, a programming language for robotic controllers. Interconnection, physical linking of a telecommunication carrier's network.

What does IC stand for in roleplay? ›

In Character (IC) is a term meaning that the Character or Player one is pointing to, is In Character, meaning all actions this player does shall be considered done by his/her Character, unless Ret Conned (See Below).

What does IC mean in military? ›

The term 'intelligence community' refers to the following agencies or organizations: (1) The Central Intelligence Agency (CIA); (2) The National Security Agency (NSA); (3) The Defense Intelligence Agency (DIA); (4) The offices within the Department of Defense for the collection of specialized national foreign ...

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